So Many Meds

I was looking through some old photos and I came across this one. (sorry it’s large)

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That was the month I started treating Lyme & Co’s for the first time. My husband and I were going out of town and I remember looking at my bag and thinking “WOW, these are a lot of meds to take”, so I snapped a photo of it and sent it to my siblings saying “Look at all the meds I have to take.” I also thought I will only need these meds to get me better .. HA .. boy was I wrong! 

I threw away a lot of my meds and empty bottles, but I saved some just in case something happens with our insurance or whatever .. you just never know now a days! After I looked at this photo, I went and gathered all my meds and supplements that I have taken in the past year, and I would say this photo is just half of what I took – not including the empty bottles I threw away!!

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It’s crazy how many supplements/meds Lyme patients need to get better! You name it, and we are on it!

Ooooohh, the joy’s of having a chronic illness, right?! :p

Blessings,

Aisha

 

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Chuck

I was in Duluth for a few days this past week visiting family and to kind of get away from all the decision making for our new house. Building a new home is stressful and being ill while doing it is sooo tough. My body felt like it was shutting down on me and I was very emotional … so I needed a little break and decided to go up there to spend some time with my amazing family!

One morning, I got up a little early to get coffee from one of my favorite shops up there. As I was turning into the parking lot, I see an elderly gentleman in a wheelchair struggling to go up a hill backwards. With no hesitation, I pulled over, got out of my car and walked towards him. I looked at his sweet wrinkly face and asked if I could help him get up the hill, and with a sense of relief in his eyes, he agreed. As I was pushing him up the hill I noticed him trying to help me by moving the wheels of the chair, I told him to sit back and relax and enjoy the beautiful fall trees. Here’s me, a 105 lb gal pushing at least a 180 lb man plus his wheelchair weight up a pretty steep hill. My heart was pounding hard and fast, my legs were weak and shaky, I really thought I was going to drop dead right there. It was a gorgeous day and people were out and about, big men painting outside of a bank right next to us, people running errands and not one single person offered to help!!

As I was panting and praying in my mind I won’t drop dead, the sweet man asked me what I was doing in town and I told him. He introduced himself to me, “my name is Chuck, what is yours?” “I am Aisha, sir” I said. He then proceeded to tell me story after story … it was obvious he was very eager to share these stories with someone! I could feel a sense of loneliness in his voice and it made me sad, so I made sure not to speak about myself, unless he asked, and let him do the majority of the talking! One of the stories he shared was about his health, he had been very ill for quite some time with numerous health issues and I could tell by the tone of his voice he was discouraged. He also mentioned he had potassium poisoning not too long ago, and I asked him how does someone get that and he said “I drank too much coffee” and we chuckled and I thought to myself “is this a sign I shouldn’t get any coffee this morning?!?” I did anyways haha!

I wheeled him all the way up to his Assisted Living and when we got to the front of the door, he clasped my hands, looked me in the eyes and said “Thank you for listening to me, I am so happy you came to visit your family today.” I told him it was great hearing his stories and a pleasure meeting him and I walked away with a very important lesson.

My illness consumes me and I tend to do the “Oh, poor me” and “Why me?” quite a bit. I tend to forget that there are others who are suffering just as much as I am or more or in a different way! I noticed when I am around friends or family, they ask me how I am doing and sometimes I go on and on about how awful I feel and I don’t take much time to ask about them and their lives, because they are healthy, working and doing things they love, what could possibly be wrong with their lives? But suffering comes in all different forms.

Speaking with Chuck for 10 minutes reminded me that I am not the only one suffering and hurting, and that silence is truly a gift from God. We live in a world where it is all about “me me me” … we want to talk about ourselves, our lives, what happened at work, what someone said to us, the promotion at work, how smart I am, how rich I am , bla bla bla …. but when it comes to us having to listen to someone else speak, we get annoyed or change the subject back to us.

Today, I challenge you to take some time out of your days and be silent and sincerely listen to your friend, your sibling, your grandma or a neighbor, and see how much your silence touches their soul!

Blessings,

Aisha

Health Update – New Meds, New Doc …

I saw my new doctor almost a month ago … shame on me for not updating sooner!!

My hubby and I are in the process of building a home (should be done in a few weeks here :]) and we moved in with my in laws this past weekend. I had to start packing a few weeks before moving out because my body can’t handle doing it all at once, so, let’s just say I was REALLY busy!!

Anywho, my appointment went really good. My new doctor is great and I think she is going to be the one that will get me better! She has extensive knowledge in Lyme and Co’s, she knew about the gene mutation (c677t), she is great with nutrition. She knows a lot about supplements, naturals, and antibiotics (even though I want to stay away from antibiotic use for the time being). She is great!!

My treatment plan – I am to continue taking A-bart (2 drops in the day, 1 drop at night). She added Takuna (anti-bacterial, anti-fungal, anti-viral) 2 drops in the morning, just for now, and Bentonite Clay (2 capsules before bedtime). I am on a ton of supps – fish oil, magnesium, vitamin-c, b-12 (methycobalamin) my body can’t break down b12 because of my gene mutation so I take this kind of b12, Bioavailable Folate (quatrefolic) my body doesn’t make enough folic acid and doesn’t break it down either so I take this kind, vitamin D3 and some probiotics.

I didn’t start any of the new stuff until a week after my appointment because I felt pretty awful after coming back from Wisconsin. I was sleeping all day, felt super weak .. I just did not feel right. My mind was running wild with thoughts like “what if Lyme Disease is airborne now? especially since Lyme is endemic in WI” or “It was that mosquito that stung me … I probably have West Nile virus on top of all the other junk I have … great”. I went to the doctor and got some blood work done. My WBC were low and Lymphocytes were slightly elevated, the doctor said I probably had a viral infection going on. I was freaking out because last time my blood work was like this was when I had “flu like” symptoms at the beginning of my lyme journey. I emailed my primary (very very lyme friendly) four days later and told her what was going on and she put in an order for me to get my WBC and Lymphocytes rechecked. Thankfully, they were normal, but a few days after that I got a nasty cold and cough that lasted about a week (I guess there was a bad virus going on). I am better, but my gosh I felt really sick for a few weeks there. On top of that, I was herxing from starting the new meds … awful combo!!!

So here I am now, crossing my fingers all this works. She will be adding more things and upping the drops slowly down the road!!

I am constantly being reminded of God’s goodness. This time last year we were living with my brother-in-law and I seriously thought we were going to be living with him for years because of the circumstances we were in. Now, my wonderful/hard working husband and I are building our first home together. I am very very thankful!!

He is so good.

Blessings & love,

Aish 🙂