The Walking Lymies

I got a glimpse of myself as I was walking by our bedroom mirror the other morning, and I was frazzled.

It was a bad morning!

I had the Lyme hangover (you, Lyme friends, know what I am talking about)… it felt like a big semi ran over my body 10 times the night before!

I woke up from bed and my hair looked like a I was rocking out hard in my sleep … it was everywhere. Beautiful (not really) fluffy bags under my eyes. Pale skin. Zits the size of a golf ball on my face (why on earth am I breaking out at the age of 28?!?) … I mean my husband couldn’t get any luckier! My golly he scored big time!

I knew I resembled someone when I saw myself in the mirror, but I couldn’t pin-point who it was!

And then it hit me ….

I looked like the walkers from The Walking Dead … the resemblance was uncanny!!

The hair .. identical. The Stance … identical. The walk … identical. Too bad we didn’t hear about the auditions for the part earlier on. We wouldn’t need all that makeup they put on their faces, we would just have to wake up from a herx and TADA … we look like walkers!!

Fellow Lymies, I think we found ourselves a job to pay for the copious amount of meds, herbals, supps, doc appointments and not to mention, therapy, because this illness makes you go totally crazy!!!

Watch out Hollywood, here comes The Walking Lymies!!!

 

 

 

 

 

 

House, Health & Acupuncture

Yay! I survived the move!!

The past few months have been crazy busy, especially the past few weeks. We moved in to our home two Wednesday’s ago … we had to unpack, clean (my mother in law did most of it) & more unpacking … it felt like it was never ending and honestly, it still feels that way! I went up to Duluth two weekends ago because my sisters longtime boyfriend was planning a surprise proposal. Also, this past weekend my husband and I drove down to Rochester because both of us were in a wedding … so, yeah, it has been a little nuts lately!!

So, what is going on with my health?

Well, I am still on Takuna & A-bart. Now that life is slowing down a bit, I upped my Takuna dose to 2 drops and once I stop herxing from it I will add Quina (Microbial Defense) and Enula (for Babesia). My LLMD thinks I still have some Babesia in me – I treated babs (short cut for babesia) for a year with Mepron & Azithromycin, I was also on Minocycline (not sure if it hits babs or not), anyways, she thinks my treatment for babs wasn’t long enough and the meds weren’t enough. So, here I go again with babs treatment. To be honest with you, I am petrified to start Enula because I had the worst herxes from treating babs. The herxes were stroke like symptoms … VERY VERY scary. I was also the most depressed I had ever been when I was treating babesia … it was a very scary time in my life! I am praying that I will react differently this time around because a) they are herbals and b) I am hoping my babesia load is down, so I won’t herx as bad …. we shall see!!!

I started a sublingual b12 methylcobalamin a month ago because of the C677t gene mutation that I have, and I can say that I have noticed a bit of a difference in my energy. I am still looking for someone who is able to interpret my raw data from my 23andme results so I can figure out what supplements work for me and which ones don’t!

I did acupuncture for the first time last week. I had heard mixed reviews about getting acupuncture done while having Lyme and Co-infections, so, I wanted to experience it myself and see what it was all about.

It was strange … very very strange.

The acupuncturist touched spots on my feet, legs, stomach, arms, hands, head and ears and by doing that she could tell what was going on in my body!! It was crazy! My liver is good, my gallbladder is good, something is goofy with my spleen and my large intestine and of course my immune system is bad.

Prior to this, I filled out a symptom checklist and, no joke, I almost checked off every symptom on the list. She looked at it and said “yikes” and in my mind I said “lady, I feel so sorry for you because you have a handful.”

She put the needles in my feet, legs, hands, arms, ears and hands. Shockingly, they didn’t hurt, but they felt a little weird! Then, she put a hypothermia blanket on me and told me to nap for 20 minutes. I thought she was joking – how can someone nap looking like that?!?!

As she exited the room I had a giggling attack because I thought I looked ridiculous … oh, at what length some people (me) will go for their health!!!

I felt very odd the first 5 minutes into it. Heart palpitation, weird sensations in my body, vertigo – basically a lot of my symptoms were heightened. I was very tempted to exist the room and walk next door (to her office) and ask her to take the pins out of my body, but I thought that would make me look even more ridiculous. Fifteen minutes into it I became extremely sleepy and the sleepiness/fatigue/vertigo continued for several hours after my appointment, but after that I had an enormous amount of energy!

Since then, the ringing in my ears have diminished, my anxiety has been less this week & I feel happier! I see her again this Thursday … slightly dreading it because of how I felt the first 5 minutes, but, if it will help me get better, then it is definitely worth it!!

Blessings & Love,

Aisha πŸ™‚

 

Friends

Image

Β 

I was a social butterfly at a very young age.

The only thing I looked forward to when my mom or dad woke me up for school was being able to hang out with my friends.Β 

I couldn’t wait for recess; to chit-chat, run, play, share meals, laugh, and hug each other.

I loved dance classes because I got to talk to friends about how puffy our pink tutu’s were, where we got our pink ballet slippers from and help one another do a pirouette!

I couldn’t wait for summer because I got to spend everyday at the swimming club with friends – laying on the grass tanning, jumping off diving boards, and teaching one another how to do back flips

Friends were always my comfort, my safe place.

Lyme stole my personality from me (not for too long). I am not the social butterfly I once was.

I am isolated from most of my friends. I missed and still miss out on soo many events I wish more than anything to be part of but Lyme wants my body at home, in bed, away from everyone.Β 

My mother once told me, “Aisha, the only time you will find out who your true friends are is when you are going through a hard time in life.” The older I am getting, the more I realize how right mom’s are on A LOT of things … listen to them, young ones!

Oh, was she right.

When I first got sick last year, the friends I thought would be there for me, turned out to be the ones who hardly ever asked how I was doing – it hurt me deeply!! Except my best friend a few other good friends .. I always knew they would be there with me through it all! But to my surprise, the ones I didn’t think would, were the ones that were right by my sidel!!

Lyme Disease opened my eyes to a lot of things, it almost feels as if I was blinded by my surroundings when I was healthy. I am now able to look around me and see which friends of mine are still standing by me after all that has been stripped away from me. This would have never happened had it not been for my illness. I also have been blessed with amazing/new friendships!Β 

Friendships I am certain will last a lifetime.

They love me for the person I am right now. There is no faking on my end around them. No pretend laughs, no forced conversations … nothing! It takes a lot of energy out of a person with Lyme to talk, to laugh or to even smile but with these friends, I can just be me … no more pretending and it feels good. Oh, so good!

A true friend is one that will call you on her way to work on a random day to check and see how you are feeling.

A true friend will text you and ask you if you need help cleaning the house.

A true friend will text and ask if they can grocery shop for you.

A true friend will send you a Bible verse and encouraging words for the day.

A true friend will pray over you.

A true friend will put her arm around you when you are hurting.

A true friend will send you an email to see how you are doing.

A true friend will take some time out of their day to pray for you.

A true friend will never discourage you.

All you need is one friend … just one friend that understands your pain and tears. Just one friend that will love you for who you are.Β That is way more valuable than having 50 friends who only show up for your smiles!!

Β 

Blessings & Love,

Aisha

Β 

Β 

Β 

Β 

Β 

Β 

Β 

Β 

Β